26
Sep

Coal Miner’s Daughter

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(Don’t mind the upside down photos, I’ll fix them later.)

Peoria, Illinois to Steubenville, Ohio

So technically we have been driving through a lot of urban sprawl but for some reason all day long I’ve had “Coal Miner’s Daughter” in my head. (Wasn’t Loretta Lynn from Kentucky??)  Anyway, in the irony that is my life, what did we pass on our way here tonight?  A HUGE coal refinery. It was awe inspiring to drive past it’s huge lights and towering smelter (?).  Actuallseasy a little frightening because on first appearance it seemed to appear out of no where.  Kind of freaky cool.

Lots of hours in the van again. We met some really interesting people at each of our pit stops. Real characters.

I like chatting with people in settings totally foreign to me (odd but true). This trip has proven that most people just want to share a bit about themselves and hear a bit in return.  We’re all pretty curious and when you get right down to it most people are more than willing to share a smile or share a moment. I think it’s one of my favourite things about travelling.  Now when I think of South Dakota or Illinois I have that cast of characters to hang memories on.

The kids played a number of rounds of Bingo. Faith avoids all games like the plague and Isaiah is content to hold a card. The other four duke it out pretty fiercely. So far the wins are:

James – 11

Garnet – 8

Grace – 5

Samuel – 3

Prizes are received at stops along the way. Mostly junk food which Faith does not generally care for and Isaiah begs for until some passing sibling shares a piece of their winnings. Truth. It passes the time nicely.

We are getting close to our temporary residence now. Stephen and I are becoming more snappish and feeling more ages and pains. The reality of the next week has hit. The treatment plan or the decision to not treat Isaiah will be worked out by Monday evening.

It’s always such a mixed bag when you are raising kids with complex physical, emotional or cognitive needs. First and foremost they are your child. You cheer them, correct them, lead them and basically do life in the same way as every other family you know. But, when you are faced with a new medical procedure, a new treatment or therapy, that’s when it hits you that something big is looming.  Be it for good or bad, it looms. And I takes it’s toll on each of us in the family herd.

No matter what the outcome of the hospital visit on Monday, we’ll all be okay. We’ve done hard before and each of us has found ways to not only survive but thrive.  I guess at the bottom of it all we just wish in these moments that it wasn’t our kid facing it too. But I’d say that probably that makes us fairly normal. Average even.

So, onward we go!

As an aside, we are staying at a hotel within the grounds of a Franciscan University. It is really quite nice but between the style of the hotel and the goosebumps the coal plant gave me, I couldn’t help but think of a character out of the classic Scooby Doo characters when we met one of the staff here down the long subterranean hallway. Okay, maybe not entirely subterranean, but definitely out of the way. Stephen just shakes his head at me. Remember what I said about a cast of characters though?  It looks like I have a new one for Ohio!  😉

 

 

 

 

 

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